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Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...

The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...

Family Matters, My Journey, Community in Action

It’s summertime, and kids are out of school and excited to have fun in the great outdoors. After a year...

Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...

Novel Technologies, Surgery & Transplants, Global Focus

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)