HemAware

Featured On HemAware

ITP: Causes, Diagnosis, and Treatment

ITP is a rare autoimmune disorder that causes low platelets, leading to easy bruising, bleeding, and fatigue.
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Ask These Questions Before Following Health Advice on Social Media

You can find a lot of information in your social feeds, but is it true? Here’s how to find out.
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Ask a Social Worker: What Should I Be Doing to Age Well with Hemophilia?

Living longer with hemophilia brings new challenges — proactive planning helps protect health, independence, and quality of life.
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Recent Articles

Why Genetic Testing Matters for Girls at Risk for Hemophilia

Girls at risk for hemophilia are often overlooked for genetic testing, which can contribute to delayed diagnosis and care.

Women's Bleeding Disorders

Bleeding Disorder Self-Care and Self-Advocacy When You’re at College

Follow these tips to successfully manage your condition while you’re away from home and own your own.

Taking Charge, Generation Next

Stroke Prevention for Women with Bleeding Disorders

Women with bleeding disorders face unique stroke risks. Updated guidelines highlight prevention strategies and hormonal treatment considerations.

Women's Bleeding Disorders

Are You Ready for Washington Days 2020?

On February 26-28, bleeding disorders advocates from around the country will convene in Washington, DC, for the National Hemophilia Foundation’s...

Advocacy

Pushing the Boundaries of Treatment for Hemophilia A and B

Last September, scientists, doctors, advocates and people with hemophilia gathered in Washington, DC, for the National Hemophilia Foundation’s (NHF) 15th...

Novel Technologies

My Bleeding Disorders Community (MyBDC): For You, By You

For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices...

Community in Action

Illustration of researchers, regulators and community members involved in bleeding disorders research

A New Plan for Tackling Inhibitors

In May 2018, more than 200 people representing scientific researchers, hemophilia patients, advocates, clinicians and the pharmaceutical industry gathered in...

Novel Technologies

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

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