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Featured On HemAware

Period Tracking Apps and Privacy: What Women with Bleeding Disorders Should Know

Menstruation tracking is a valuable tool. Experts say to be vigilant in what information you share.
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Period Tracking Apps and Privacy: What Women with Bleeding Disorders Should Know
Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life

The rare condition usually affects people in their 70s and 80s without warning. Here’s what you need to know.
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Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Heavy periods with a bleeding disorder are common, and there are safe, private options to help teens manage them.
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Recent Articles

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

Community Heroes: NHF CEO Val D. Bias

When Val D. Bias became chief executive officer of the National Bleeding Disorders Foundation (NBDF) in 2008, he wasn’t just...

Community in Action, Advocacy

Community Heroes: Marion Koerper, MD

On the first day of her pediatric internship at San Francisco General Hospital, Marion Koerper, MD, noticed a 4-year-old boy...

Community in Action

Community Heroes: James V. Luck Jr., MD

Growing up in Southern California, James V. Luck Jr., MD, heard inspiring—and hair-raising—family stories about orthopedic surgery. In 1911, Luck’s...

Community in Action

Community Heroes: Ramiro Gomez

Few young artists will ever make the sort of leap that Ramiro Gomez has in less than a decade. In...

Community in Action

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC