Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Each year, hundreds of women, girls, and people with the potential to menstruate (WGPPM) who are affected by bleeding disorders...
When Patrick James Lynch launched BloodStream in 2016, he sought to create something that didn’t yet exist: a podcast featuring...
In February, the National Bleeding Disorders Foundation (NBDF) warmly welcomed Philip Gattone, M.Ed., as its new president and CEO. Gattone...
At every life stage, a blood or bleeding disorder can lead to new questions and concerns. The Steps for Living...
Learn what to expect in a gene therapy clinical trial for hemophilia and what to consider before participating.
The National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference is an opportunity for all members of the inheritable blood...
When I was an infant, I developed purple and pink bruises all over my body. My parents carried me from...
The World Federation of Hemophilia (WFH) is happy to announce a return to a fully in-person of the WFH 2024...
Here’s what they shared.
The National Bleeding Disorders Foundation (NBDF) has been celebrating its 75th anniversary in 2023. Throughout the year, HemAware.org has been...
I came of age in the 1970s, when there was an explosion in the women’s health movement. I got involved...
In 2023, as the foundation celebrated its 75th anniversary, an exciting new chapter begins. The organization formerly known as the...
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