In-depth profiles and stories about people in the bleeding disorders community. Honoring the Life of a Remarkable Young Man with HemophiliaGrowing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...Read More My Journey View Estimated Factor VIII Levels Anytime with myWAPPS AppmyWAPPS provides real-time factor level estimates, based on your pharmacokinetics (PK) profileRead More Sponsored Content Identifying Factor Levels for Physical Activities with PharmacokineticsPharmacokinetics (PK) can help you and your doctor determine the right dose and infusion frequency for you.Read More Sponsored Content The Next Chapter for Puerto Rico’s Bleeding Disorders AssociationOrlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...Read More NHF in Action, Community in Action Recognizing Racial and Ethnic Health Disparities in Black and Latinx CommunitiesRacial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...Read More Community in Action Living with Bleeding Disorders in the Time of COVIDThe COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...Read More Family Matters, My Journey, Community in Action A World of Difference for People with Bleeding DisordersAdvances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...Read More Novel Technologies, Surgery & Transplants, Global Focus Personalizing Your Hemophilia A Treatment PlanExplore pharmacokinetics (PK) terms and learn the role of PK in creating a treatment plan that matches your needs.Read More Sponsored Content Ask a Social Worker: How Do You Know if You’re Depressed and What Can You Do About It?Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of...Read More Community in Action, Ask a Social Worker How Chapters Are Preparing for a Safer Summer CampSummer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such...Read More Community in Action Groundbreaking Hemophilia Management Program Gets Results by Innovating Medication Therapy AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core.Read More Sponsored Content Jim Christensen: “Hemophilia Directed My Path”I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...Read More My Journey Load More
