Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Jason Fulton.
Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...
View Estimated Factor VIII Levels Anytime with myWAPPS App
myWAPPS provides real-time factor level estimates, based on your pharmacokinetics (PK) profile
Identifying Factor Levels for Physical Activities with Pharmacokinetics
Pharmacokinetics (PK) can help you and your doctor determine the right dose and infusion frequency for you.
The Next Chapter
Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...
Black and latinx members of the bleeding disorders community.
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
Three members of the bleeding disorders community.
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
Glenn Pierce, MD, PhD
Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
Hemophilia A Treatment – Personalize Your Plan with Pharmacokinetics
Explore pharmacokinetics (PK) terms and learn the role of PK in creating a treatment plan that matches your needs.
Ask a Social Worker.
Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of...
How Chapters Are Preparing for a Safer Summer Camp
Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such...
Groundbreaking Hemophilia Management Program Gets Results by Innovating Medication Therapy
AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core.
Jim Christensen: “Hemophilia Directed My Path”
I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...
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