Community Pulse

One Man's New Lease on Life

Michael Tuberdyck: I found out I had hepatitis C sometime in the 1990s, which I contracted years before from tainted...

My Bleeding Disorders Community (MyBDC): For You, By You

For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices...

Community in Action

Conference attendees at the session "Gene Therapy: Getting Up to Speed"

NHF’s 71st Bleeding Disorders Conference

At the Opening Session of the National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference, held October 3-5 in Anaheim, California...

NHF in Action

Illustration of a figure looking through with binoculars standing on top of the earth

von Willebrand Disease: A Global Concern

von Willebrand disease (VWD) is a bleeding disorder linked to a blood-clotting protein called von Willebrand factor that helps control...

Global Focus

Red Tie Runners Make Their Mark with $40,000 Raised for NHF

On November 3, 2019, nine athletes laced up their sneakers, tied on their race numbers and prepared to make history...

NHF in Action

Morgan Hampton, author of Scar Tissue, a comic about his Uncle Rudi

Morgan Hampton: ‘I Was Lucky to Grow Up When I Did’

I’ve always known I had hemophilia, even before I knew what it was. Since it’s all I’ve ever known, there...

My Journey

Philanthropists of the Year: Steve and Sheila Kopenitz

Texas couple commits to helping families make lifelong connections.

Community in Action

Community Heroes: NHF CEO Val D. Bias

When Val D. Bias became chief executive officer of the National Hemophilia Foundation (NHF) in 2008, he wasn’t just the...

Community in Action, Advocacy

Community Heroes: Marion Koerper, MD

On the first day of her pediatric internship at San Francisco General Hospital, Marion Koerper, MD, noticed a 4-year-old boy...

Community in Action

Community Heroes: James V. Luck Jr., MD

Growing up in Southern California, James V. Luck Jr., MD, heard inspiring—and hair-raising—family stories about orthopedic surgery. In 1911, Luck’s...

Community in Action