Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

New York Rangers Head Coach David Quinn on Hockey and Hemophilia

Quinn hung up his skates at 20 because of his bleeding disorder—but he still made it to the NHL.Read More

My Journey

The Sky’s the Limit

A man with severe hemophilia B and his soaring ambition.Read More

My Journey

NHF Announces Innovative Investigator Award Recipients

These grants are part of NHF’s increased commitment to funding critical bleeding disorders research.Read More

Researcher Profiles, NHF in Action

Milo Cedeno and Michael Tarantino, MD at the NHF Red Tie Soiree held May 9 at Current at Chelsea Piers in New York

Celebrating the Past and Forging Ahead at NHF’s Red Tie Soiree

More than 250 attendees stood with National Hemophilia Foundation (NHF) CEO Val D. Bias as he raised a glass to...Read More

NHF in Action

Advocates at United States Senator Tom Carper's office during Washington Days and the NHF Red Tie Campaign

Red-Letter Campaign

In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National...Read More

Community in Action

Nurse Hannah Lutz has von Willebrand disease type 3

‘I’m a Nurse Because of My Bleeding Disorder’

I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K...Read More

My Journey, Von Willebrand Disease, Women's Bleeding Disorders

Illustration of doctors and community members in Guam

Bleeding Disorders Care in Guam Shows That No HTC Is an Island

One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...Read More

Community in Action

Scholarship Provides a Helping Hand to Students

Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...Read More

Community in Action, Hemophilia A&B, HIV

Hacking Hemophilia

GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive...Read More

NHF in Action

The Williams family of Tallahassee, Florida, at one of NHF's Inhibitor Summits.

NHF Inhibitor Education Summits Empower and Connect

Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to...Read More

NHF in Action