In-depth profiles and stories about people in the bleeding disorders community. Hemophilia B—an excellent candidate for gene therapy Gene therapy aims to address the root cause of hemophilia B and help people produce stable and protective levels of...Read More Sponsored Content Making Sense of It All What exactly is a gene? What happens when genes mutate? And can gene therapy research help solve problems related to...Read More Sponsored Content Black Women with Bleeding Disorders Are Striving to Be Seen and Heard Ronia Cole, 52, of Redford Township, Michigan, has lived with a bleeding disorder since she was a toddler. “I’d take...Read More Community in Action Training for Life: How Bodybuilding Became My Purpose I was diagnosed with severe hemophilia B at birth. I’m the first person in my family to have a bleeding...Read More My Journey Amy Dunn, MD, Is New Chair of MASAC Amy Dunn, MD, says a patient she diagnosed with hemophilia during her first year of residency changed the course of...Read More NHF in Action Ask a Social Worker: What’s the Latest on the Stimate Nasal Spray Recall? Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...Read More Community in Action, Ask a Social Worker A Brief History of Gene Therapy: What It Means and Its Promise for the Hemophilia B Community Over 10,000 individuals worldwide have been treated with various gene therapy products. Gene therapy is a medical treatment that uses...Read More Sponsored Content The Perils of Pain & The Potential for Progress When Joseph Burke wakes up in the morning, his first question isn’t how he is going to feel today, it’s...Read More Sponsored Content Bleeding Disorders in Pop Culture Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...Read More Community in Action A New Opportunity to Address Chronic Pain Randall Curtis, 66, survived life-threatening bleeds in the years before scientists discovered how to make clotting factor for home infusion.Read More Sponsored Content A Brighter Future for the Bleeding Disorders Community in Nigeria Although my great-grandmother lost four sons to post-circumcision bleeding and my grandmother lost nine sons the same way, I’d never...Read More My Journey 4 Creative Fundraising Ideas to Support NHF For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for...Read More Community in Action Load More
