In-depth profiles and stories about people in the bleeding disorders community. All About the World Federation of Hemophilia’s Shared Decision-Making Tool Shared decision-making (SDM) is a process in which a patient and their health care team work together to make decisions... Read More Global Focus Chapter Events for Women, Girls, and People with the Potential to Menstruate Each year, hundreds of women, girls, and people with the potential to menstruate (WGPPM) who are affected by bleeding disorders... Read More Chapter Roundup A Conversation with the BloodStream Podcast Co-Hosts When Patrick James Lynch launched BloodStream in 2016, he sought to create something that didn’t yet exist: a podcast featuring... Read More Community in Action Meet NBDF’s New Leader, Phil Gattone In February, the National Bleeding Disorders Foundation (NBDF) warmly welcomed Philip Gattone, M.Ed., as its new president and CEO. Gattone... Read More NBDF in Action Introducing the Newly Updated Steps for Living Website At every life stage, a blood or bleeding disorder can lead to new questions and concerns. The Steps for Living... Read More Community in Action Is Gene Therapy Clinical Trial Participation Right for Me? Learn what to expect in a gene therapy clinical trial for hemophilia and what to consider before participating. Read More Sponsored Content 2023 Bleeding Disorders Conference: Awards of Excellence Honorees The National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference is an opportunity for all members of the inheritable blood... Read More NBDF in Action Riding High with Hemophilia When I was an infant, I developed purple and pink bruises all over my body. My parents carried me from... Read More My Journey WFH 2024 World Congress Is Coming to Madrid The World Federation of Hemophilia (WFH) is happy to announce a return to a fully in-person of the WFH 2024... Read More Global Focus 8 People Living with Hemophilia (PwH) Spoke About Their Hemophilia Truths Here’s what they shared. Read More Sponsored Content The Impact of Washington Days on Inheritable Blood and Bleeding Disorders Advocacy The National Bleeding Disorders Foundation (NBDF) has been celebrating its 75th anniversary in 2023. Throughout the year, HemAware.org has been... Read More NBDF in Action Community Health Is in Dr. Judith Baker’s Blood I came of age in the 1970s, when there was an explosion in the women’s health movement. I got involved... Read More My Journey Load More
