Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

Philanthropists of the Year: Steve and Sheila Kopenitz

Texas couple commits to helping families make lifelong connections.

Community in Action

Community Heroes: NHF CEO Val D. Bias

When Val D. Bias became chief executive officer of the National Hemophilia Foundation (NHF) in 2008, he wasn’t just the...

Community in Action, Advocacy

Community Heroes: Marion Koerper, MD

On the first day of her pediatric internship at San Francisco General Hospital, Marion Koerper, MD, noticed a 4-year-old boy...

Community in Action

Community Heroes: James V. Luck Jr., MD

Growing up in Southern California, James V. Luck Jr., MD, heard inspiring—and hair-raising—family stories about orthopedic surgery. In 1911, Luck’s...

Community in Action

Community Heroes: Ramiro Gomez

Few young artists will ever make the sort of leap that Ramiro Gomez has in less than a decade. In...

Community in Action

Community Heroes: Renita Johnson

As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders...

Community in Action, Advocacy

Community Heroes: Alex Dowsett

On July 28, British professional cyclist Alex Dowsett accomplished something not many people probably thought was likely when he was...

Community in Action

Honoring the Stars of the Bleeding Disorders Community

2019 Awards of Excellence The following people and organizations were honored with awards at the 2019 Bleeding Disorders Conference. Physician...

Community in Action

5 Books on the History of the Bleeding Disorders Community

The bleeding disorders community has changed dramatically over the past several decades. Advanced treatments mean people now live significantly improved...

Community in Action

Funding Future Breakthroughs in Bleeding Disorders Research

Named for the pioneering Stanford University physiologist who discovered the method for creating cryoprecipitate in 1965, revolutionizing care for people...

Community in Action