Community Pulse

Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

 

Advocates at United States Senator Tom Carper's office during Washington Days and the NHF Red Tie Campaign

Red-Letter Campaign

In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National...Read More
Community in Action
Nurse Hannah Lutz has von Willebrand disease type 3

‘I’m a Nurse Because of My Bleeding Disorder’

I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K...Read More
My Journey, Von Willebrand Disease, Women's Bleeding Disorders
Illustration of doctors and community members in Guam

Bleeding Disorders Care in Guam Shows That No HTC Is an Island

One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...Read More
Community in Action
Portrait of Christopher Statton

Scholarship Provides a Helping Hand to Students

Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...Read More
Community in Action, Hemophilia A&B, HIV
A team of hackers at the Hacking Hemophilia event at MIT in October 2017

Hacking Hemophilia

GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive...Read More
NHF in Action
The Williams family of Tallahassee, Florida, at one of NHF's Inhibitor Summits.

NHF Inhibitor Education Summits Empower and Connect

Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to...Read More
NHF in Action
Boy talks with Congressional staffer during NHF's Washington Days 2018

Inside Washington Days 2018

On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...Read More
NHF in Action, Insurance, Advocacy
Team NHF's Half-Marathon Team

Fueled by Inspiration: The Stories Behind NHF’s Half-Marathon Team

On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding...Read More
NHF in Action
Medicine vials used for medical research with syringe for

After Approval: Ensuring the Safety of Bleeding Disorders Medicines

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...Read More
Advocacy, Community in Action
Man stands in front of world map at World Federation of Hemophilia World Congress

Gathering in Glasgow for the World Federation of Hemophilia World Congress

“The threat to the life of just one hemophiliac would be sufficient reason for us to travel to this meeting....Read More
Global Focus
Amelia Mickeliunas hosts a lemonade stand in Omaha, Nebraska, to raise money for NHF.

Everyday Heroes Help the Bleeding Disorders Community

Amelia Mickeliunas Lemonade stand fundraiser, Omaha, Nebraska In 2016, when Jenny and Joe Mickeliunas’ newborn son, Elliott, was diagnosed with...Read More
Community in Action
man standing in front of Capitol building in Washington DC

My Twin with a Bleeding Disorder

My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he...Read More
My Journey
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.
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