Community Pulse

Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

 

Renita Johnson and her son Edwin.

Community Heroes: Renita Johnson

As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders...
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Community in Action, Advocacy
Professional cyclist Alex Dowsett

Community Heroes: Alex Dowsett

On July 28, British professional cyclist Alex Dowsett accomplished something not many people probably thought was likely when he was...
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Community in Action

Honoring the Stars of the Bleeding Disorders Community

2019 Awards of Excellence The following people and organizations were honored with awards at the 2019 Bleeding Disorders Conference. Physician...
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Community in Action
5 Books on the History of the Bleeding Disorders Community

5 Books on the History of the Bleeding Disorders Community

The bleeding disorders community has changed dramatically over the past several decades. Advanced treatments mean people now live significantly improved...
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Community in Action
Judith Graham Pool in the laboratory

Funding Future Breakthroughs in Bleeding Disorders Research

Named for the pioneering Stanford University physiologist who discovered the method for creating cryoprecipitate in 1965, revolutionizing care for people...
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Community in Action
View of the Petronas Twin Towers from inside the Kuala Lumpur Convention Centre

Looking Ahead to the WFH 2020 World Congress

Excitement is already building for the World Federation of Hemophilia (WFH) 2020 World Congress, which will take place at the...
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Global Focus
Carl Schwarz outdoors in Hawaii

Living the Dream with My Bleeding Disorder

"I use a huge array of skills, from helicopter usage to search-and-rescue techniques to how to capture bats."
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My Journey
2019 Bleeding Disorders Conference Preview

2019 Bleeding Disorders Conference Preview

Get the most out of NHF.
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NHF in Action
Bob Seaton of Music for the Cause playing the guitar.

Something to Sing About

“Music for the Cause is truly a labor of love.”
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Community in Action
The Sony Center in Berlin, Germany, lit up in red for World Hemophilia Day.

Connecting the Global Bleeding Disorders Community

How World Hemophilia Day 2019 was celebrated around the world.
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Global Focus
Covers of hemophilia comic books.

New Comic Books About Hemophilia

Jumo Health and NHF have teamed up to increase health literacy for those managing the disorder
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NHF in Action
Leighton and Shelley Easter at the gymnastics gym where Leighton trains.

A Mother’s Message

"She’s learning to go for her dreams."
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My Journey
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.
Contact HANDI