Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Learn what to expect in a gene therapy clinical trial for hemophilia and what to consider before participating.
Get key information on gene therapy clinical trials for hemophilia, and continue learning with new content from Hemophilia Forward.
The National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference is an opportunity for all members of the inheritable blood...
When I was an infant, I developed purple and pink bruises all over my body. My parents carried me from...
The World Federation of Hemophilia (WFH) is happy to announce a return to a fully in-person of the WFH 2024...
Here’s what they shared.
The National Bleeding Disorders Foundation (NBDF) has been celebrating its 75th anniversary in 2023. Throughout the year, HemAware.org has been...
I came of age in the 1970s, when there was an explosion in the women’s health movement. I got involved...
In 2023, as the foundation celebrated its 75th anniversary, an exciting new chapter begins. The organization formerly known as the...
Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...
The National Bleeding Disorders Foundation (N BDF ) has been celebrating its 75th anniversary in 2023. Throughout the year, HemAware.org...
The National Bleeding Disorders Foundation (NBDF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this...
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.