Community Pulse

Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

 

Michael Tuberdyck: I found out I had hepatitis C sometime in the 1990s, which I contracted years before from tainted...
For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices...
At the Opening Session of the National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference, held October 3-5 in Anaheim, California...
von Willebrand disease (VWD) is a bleeding disorder linked to a blood-clotting protein called von Willebrand factor that helps control...
On November 3, 2019, nine athletes laced up their sneakers, tied on their race numbers and prepared to make history...
I’ve always known I had hemophilia, even before I knew what it was. Since it’s all I’ve ever known, there...
Texas couple commits to helping families make lifelong connections.
When Val D. Bias became chief executive officer of the National Hemophilia Foundation (NHF) in 2008, he wasn’t just the...
On the first day of her pediatric internship at San Francisco General Hospital, Marion Koerper, MD, noticed a 4-year-old boy...
Growing up in Southern California, James V. Luck Jr., MD, heard inspiring—and hair-raising—family stories about orthopedic surgery. In 1911, Luck’s...
Few young artists will ever make the sort of leap that Ramiro Gomez has in less than a decade. In...
As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders...
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.