Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Hemophilia of South Carolina (HSC) was at a crossroads in March 2013. The 40-year-old, all-volunteer chapter had been facing some...
Alex Borstein is notable for a number of things—as the voice of the preternaturally patient Lois Griffin on FOX’s long-running...
The National Hemophilia Founda­tion’s (NHF’s) Annual Meeting brings together people with bleeding disorders and their families, providers and industry representatives...
In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their efforts...
The World Federation of Hemophilia’s (WFH’s) 2014 World Congress, the largest international meeting dedicated to hemophilia, von Willebrand disease, rare...
Jennifer Chun found very little community support for families of people with bleeding disorders in Oahu, Hawaii, when her son...
In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their efforts...
A horde of fit athletes will gather ­September 7–8 on the banks of ­Canandaigua Lake in upstate New York to...
Members of the National Hemophilia Foundation’s (NHF’s) National Youth Leadership Institute (NYLI) learned valuable leadership skills during a training program...
When representatives of the Federación de Hemofilia de la República Mexicana (Hemophilia Federation of the Republic of Mexico) explored reaching...
In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their efforts...
Every year on April 17, the global bleeding disorders community comes together to mark World Hemophilia Day (WHD). World Hemophilia...
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