Community Pulse

Joey Smiles at the Pennsylvania State Capitol Complex in Harrisburg.

Voices for Change in the Bleeding Disorders Community

Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...

Advocacy, Community in Action

How the National Youth Leadership Institute Trains Tomorrow’s Leaders

The National Bleeding Disorders Foundation (N BDF ) has been celebrating its 75th anniversary in 2023. Throughout the year, HemAware.org...

75th Anniversary, NBDF in Action

How HIV/AIDS Affected the Bleeding Disorders Community

The National Bleeding Disorders Foundation (NBDF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this...

75th Anniversary, NBDF in Action

Teaming Up to Treat People with Bleeding Disorders

The National Bleeding Disorders Foundation (NBDF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this...

75th Anniversary, NBDF in Action

How A Treatment for Hemophilia A Helped David Take the Stage

From the moment David was born, his family was on the lookout for signs of hemophilia.

NHF’s Annual Bleeding Disorders Conference Over the Years

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

NBDF in Action

Together, Let’s Move the Science of Hemophilia Forward®

Get an overview of investigational gene therapy, an approach being researched for use in hemophilia

Personal Connections: How Local Chapters Transform the Lives of People with Bleeding Disorders

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

75th Anniversary, Chapter Roundup

Careers and Chronic Conditions Such as Bleeding Disorders

Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation...

Advocacy, Community in Action

National Hemophilia Foundation and the Kosovo Hemophilia Foundation: A Perfect Pairing

Dawn Rotellini vividly remembers her first trip to Kosovo in 2019. The National Hemophilia Foundation’s chief operating officer, who is...

NBDF in Action

The Power of Summer Camps for Kids with Bleeding Disorders

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

75th Anniversary, Community in Action

CSL Behring launches B SUPPORT™, an app designed for the hemophilia B community

CSL Behring is excited to announce the launch of the B SUPPORT app, a digital solution designed to support patients’...