In-depth profiles and stories about people in the bleeding disorders community. A Brighter Future for the Bleeding Disorders Community in Nigeria Although my great-grandmother lost four sons to post-circumcision bleeding and my grandmother lost nine sons the same way, I’d never... Read More My Journey 4 Creative Fundraising Ideas to Support NHF For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for... Read More Community in Action Innovative Investigator Research Award Recipient Tam Perry, PhD Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A... Read More Researcher Profiles, My Journey Protecting Joint Health: What Motivates You to Get Active? Sponsored content by Sanofi Genzyme. Healthy joints are important for our health. They allow us to do the things in... Read More Sponsored Content Honoring the Life of a Remarkable Young Man with Hemophilia Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the... Read More My Journey View Estimated Factor VIII Levels Anytime with myWAPPS App myWAPPS provides real-time factor level estimates, based on your pharmacokinetics (PK) profile Read More Sponsored Content Identifying Factor Levels for Physical Activities with Pharmacokinetics Pharmacokinetics (PK) can help you and your doctor determine the right dose and infusion frequency for you. Read More Sponsored Content The Next Chapter for Puerto Rico’s Bleeding Disorders Association Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks... Read More NBDF in Action, Community in Action Recognizing Racial and Ethnic Health Disparities in Black and Latinx Communities Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to... Read More Community in Action Living with Bleeding Disorders in the Time of COVID The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have... Read More Family Matters, My Journey, Community in Action A World of Difference for People with Bleeding Disorders Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has... Read More Novel Technologies, Surgery & Transplants, Global Focus Personalizing Your Hemophilia A Treatment Plan Explore pharmacokinetics (PK) terms and learn the role of PK in creating a treatment plan that matches your needs. Read More Sponsored Content Load More
