In-depth profiles and stories about people in the bleeding disorders community. Identifying Factor Levels for Physical Activities with Pharmacokinetics Pharmacokinetics (PK) can help you and your doctor determine the right dose and infusion frequency for you. Read More Sponsored Content The Next Chapter for Puerto Rico’s Bleeding Disorders Association Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks... Read More NBDF in Action, Community in Action Recognizing Racial and Ethnic Health Disparities in Black and Latinx Communities Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to... Read More Community in Action Living with Bleeding Disorders in the Time of COVID The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have... Read More Family Matters, My Journey, Community in Action A World of Difference for People with Bleeding Disorders Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has... Read More Novel Technologies, Surgery & Transplants, Global Focus Personalizing Your Hemophilia A Treatment Plan Explore pharmacokinetics (PK) terms and learn the role of PK in creating a treatment plan that matches your needs. Read More Sponsored Content Ask a Social Worker: How Do You Know if You’re Depressed and What Can You Do About It? Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of... Read More Community in Action, Ask a Social Worker How Chapters Are Preparing for a Safer Summer Camp Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such... Read More Community in Action Groundbreaking Hemophilia Management Program Gets Results by Innovating Medication Therapy AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core. Read More Sponsored Content Jim Christensen: “Hemophilia Directed My Path” I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes... Read More My Journey A Novel Experience: Living Life with Hemophilia A Jonathan Hill’s graphic novel, Blood of the Paladin, opens with the moment he almost died. Traveling alone on business, he... Read More My Journey, My Journey Could the body have an immune response to experimental gene therapies? At uniQure, we know that people with genetic diseases like hemophilia B may have questions about immunity, antibodies, T cells... Read More Sponsored Content Load More
