In-depth profiles and stories about people in the bleeding disorders community. Ask a Social Worker: How Do You Know if You’re Depressed and What Can You Do About It? Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of... Read More Community in Action, Ask a Social Worker How Chapters Are Preparing for a Safer Summer Camp Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such... Read More Community in Action Groundbreaking Hemophilia Management Program Gets Results by Innovating Medication Therapy AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core. Read More Sponsored Content Jim Christensen: “Hemophilia Directed My Path” I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes... Read More My Journey A Novel Experience: Living Life with Hemophilia A Jonathan Hill’s graphic novel, Blood of the Paladin, opens with the moment he almost died. Traveling alone on business, he... Read More My Journey, My Journey Could the body have an immune response to experimental gene therapies? At uniQure, we know that people with genetic diseases like hemophilia B may have questions about immunity, antibodies, T cells... Read More Sponsored Content Updated Guidelines for the Management of Hemophilia In August 2020, the third edition of the World Federation of Hemophilia (WFH) Guidelines for the Management of Hemophilia was... Read More Global Focus Bleeding Disorders and Mental Health: Let It Out I always felt different from other kids because of my hemophilia. I endured pain nearly 24/7. While some bleeds came... Read More My Journey Navigating the Pandemic with a Bleeding Disorder COVID-19 has disrupted the lives of everyone, including young adults, who have had to navigate classes and commencements, weddings and... Read More Community in Action How Women in the Bleeding Disorders Community Are Fighting for Change For women and girls with bleeding disorders, life is often a struggle to be seen and heard by medical professionals... Read More Women's Bleeding Disorders, My Journey 5 Things You Should Know About Giving to NHF The end-of-the-year giving season is an ideal time to donate to the National Hemophilia Foundation (NHF) and support its research... Read More NBDF in Action, Community in Action Gene therapy research can be complicated. The language doesn’t have to be. You might have read our last few articles where we ask a lot of important questions about gene therapy, such... Read More Sponsored Content Load More
