Community in Action

"I think I’m a better nurse because of the types of patients I’ve taken care of, in hemophilia and oncology."Read More
"To know that you somehow made a difference in that family...that’s a very fulfilling feeling."Read More
"The second I started nursing school, I knew that I loved it."Read More
When one of its own was diagnosed with hemophilia, an Oklahoma congregation sprang into action.Read More
Hurricanes, wildfires and more test the bleeding disorders community’s preparation for emergencies.Read More
People with no prior connection to bleeding disorders become passionate advocates.Read More
In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National...Read More
One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...Read More
Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...Read More
Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...Read More
Amelia Mickeliunas Lemonade stand fundraiser, Omaha, Nebraska In 2016, when Jenny and Joe Mickeliunas’ newborn son, Elliott, was diagnosed with...Read More
On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations...Read More
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