Community in Action

Nationwide, the inheritable blood and bleeding disorders community is taking action to raise awareness for the cause. Read more to get involved and get inspired!

Renita Johnson and her son Edwin.

Community Heroes: Renita Johnson

As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders...
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Community in Action, Advocacy
Professional cyclist Alex Dowsett

Community Heroes: Alex Dowsett

On July 28, British professional cyclist Alex Dowsett accomplished something not many people probably thought was likely when he was...
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Community in Action

Honoring the Stars of the Bleeding Disorders Community

2019 Awards of Excellence The following people and organizations were honored with awards at the 2019 Bleeding Disorders Conference. Physician...
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Community in Action
5 Books on the History of the Bleeding Disorders Community

5 Books on the History of the Bleeding Disorders Community

The bleeding disorders community has changed dramatically over the past several decades. Advanced treatments mean people now live significantly improved...
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Community in Action
Judith Graham Pool in the laboratory

Funding Future Breakthroughs in Bleeding Disorders Research

Named for the pioneering Stanford University physiologist who discovered the method for creating cryoprecipitate in 1965, revolutionizing care for people...
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Community in Action
Bob Seaton of Music for the Cause playing the guitar.

Something to Sing About

“Music for the Cause is truly a labor of love.”
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Community in Action
James Munn, RN-BC, BS, BSN, MS

Spotlight on HTC Nurses: James Munn, RN-BC, BS, BSN, MS

"It’s been transformative to see the care and the changes that have occurred in the time I’ve been doing this."
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Community in Action
Arnette Hams, RN, BS, RN-HC

Spotlight on HTC Nurses: Arnette Hams, RN, BS, RN-HC

"I think I’m a better nurse because of the types of patients I’ve taken care of, in hemophilia and oncology."
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Community in Action
Kim Schafer, RN-C, MSN, FNP

Spotlight on HTC Nurses: Kim Schafer, RN-C, MSN, FNP

"To know that you somehow made a difference in that family...that’s a very fulfilling feeling."
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Community in Action
Spotlight on HTC Nurses: Susan Zappa, RN-BC, CPN

Spotlight on HTC Nurses: Susan Zappa, RN-BC, CPN

"The second I started nursing school, I knew that I loved it."
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Community in Action
Members of the Cheatham and Nivin families.

A Church’s Expanding Circle of Support for Bleeding Disorders

When one of its own was diagnosed with hemophilia, an Oklahoma congregation sprang into action.
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Community in Action
A satellite photo of Hurricane Harvey in the Gulf of Mexico in 2017.

Are You Ready if a Natural Disaster Strikes?

Hurricanes, wildfires and more test the bleeding disorders community’s preparation for emergencies.
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Community in Action
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.
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