Community in Action

Spotlight on HTC Nurses: Susan Zappa, RN-BC, CPN

"The second I started nursing school, I knew that I loved it."

Community in Action

Members of the Cheatham and Nivin families.

A Church’s Expanding Circle of Support for Bleeding Disorders

When one of its own was diagnosed with hemophilia, an Oklahoma congregation sprang into action.

Community in Action

A satellite photo of Hurricane Harvey in the Gulf of Mexico in 2017.

Are You Ready if a Natural Disaster Strikes?

Hurricanes, wildfires and more test the bleeding disorders community’s preparation for emergencies.

Community in Action

Allies of the Bleeding Disorder Community

People with no prior connection to bleeding disorders become passionate advocates.

Community in Action

Advocates at United States Senator Tom Carper's office during Washington Days and the NHF Red Tie Campaign

Red-Letter Campaign

In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National...

Community in Action

Illustration of doctors and community members in Guam

Bleeding Disorders Care in Guam Shows That No HTC Is an Island

One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...

Community in Action

Scholarship Provides a Helping Hand to Students

Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...

Community in Action, Hemophilia A&B, HIV

Medicine vials used for medical research with syringe for

After Approval: Ensuring the Safety of Bleeding Disorders Medicines

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...

Advocacy, Community in Action

Amelia Mickeliunas hosts a lemonade stand in Omaha, Nebraska, to raise money for NHF.

Everyday Heroes Help the Bleeding Disorders Community

Amelia Mickeliunas Lemonade stand fundraiser, Omaha, Nebraska In 2016, when Jenny and Joe Mickeliunas’ newborn son, Elliott, was diagnosed with...

Community in Action

3 Ways to #ShowYourRare on Rare Disease Day 2018

On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations...

Community in Action

New Hampshire’s Kennell family raises awareness and funds for hemophilia

Pumpkin Hats Help Bleeding Disorders Chapter

Alan Kennell’s son, Preston, has severe hemophilia A. Every fall, the Kennell family raises money and awareness for bleeding disorders...

Community in Action

The Hemophilia Memorial at the National AIDS Memorial Grove in Golden Gate Park opened in September 2017

Memorial Honors the Hemophilia Community Affected by AIDS

In 1990, Ryan White, an 18-year-old with hemophilia, passed away from AIDS. His mother, Jeanne White-Ginder, felt alone in her...

Community in Action