My Journey

Read the personal stories of individuals with inheritable blood and bleeding disorders in HemAware.

Carl Schwarz outdoors in Hawaii
"I use a huge array of skills, from helicopter usage to search-and-rescue techniques to how to capture bats."
Leighton and Shelley Easter at the gymnastics gym where Leighton trains.
"She’s learning to go for her dreams."
Finding Their Voices
How four members of the bleeding disorders community faced mental health challenges and found ways to thrive.
Getting Young People Hooked on Fishing
With Country Boy Fishing, Brandon Young combines his passions for angling and mentoring.
Photo of Tamar Mitchell
"There’s nothing anyone can throw at me that I can’t handle."
New York Rangers Head Coach David Quinn
Quinn hung up his skates at 20 because of his bleeding disorder—but he still made it to the NHL.
Dan Bond
A man with severe hemophilia B and his soaring ambition.
Nurse Hannah Lutz has von Willebrand disease type 3
I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K...
man standing in front of Capitol building in Washington DC
My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he...
Chris Bombardier
How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.
Chinedu Felix Osuchukwu is a visual artist and teacher with severe hemophilia A who lives in Washington, DC
A Washington, DC, artist and teacher is using his talents to help the bleeding disorders community.
Nikole Skappe (second from right) with friends at Second Chance at Prom.
Nikole Scappe, who has von Willebrand disease (VWD), held a fundraiser for the National Hemophilia Foundation in support of the...
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.