My Journey

Chris Bombardier: Reaching New Heights

How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.

Taking Charge, My Journey

Chinedu Felix Osuchukwu is a visual artist and teacher with severe hemophilia A who lives in Washington, DC

The Power of Art

A Washington, DC, artist and teacher is using his talents to help the bleeding disorders community.

My Journey

Nikole Skappe (second from right) with friends at Second Chance at Prom.

Red Tie Affair

Nikole Scappe, who has von Willebrand disease (VWD), held a fundraiser for the National Hemophilia Foundation in support of the...

My Journey

Taking the Cake

Daniela Delgado and her parents, Janine Achury and Nemorio Delgado created Daniela’s Little Wish, which delivers cakes to children with...

My Journey

Nothing But Net

Federico Parres, a sophomore at Damien High School in LaVerne, CA, has severe hemophilia A and is part of Team...

My Journey

Kai Griffith in white knit sweater, playing with toy truck

Untapped ‘Friend-Raising’ Abilities

Driven by love for her young grandson, Trish Griffith, of Knoxville, Tennessee, turned her network of friends and family members...

My Journey

Spreading the Word: HemosUnite Podcast

In each issue, we spotlight a member of the bleeding disorders community. Here, we spotlight Matti Vann, the woman behind...

My Journey

Singing From His Heart

In each issue of HemAware , we spotlight someone in the bleeding disorders community. This issue, we speak with LaRon...

My Journey

Sled Hockey Puts Hemophilia on Ice

In each issue of HemAware , we spotlight people in the bleeding disorders community. Here, we talk with Justin McClanahan...

My Journey

Giving Back to the Bleeding Disorders Community

In each issue of HemAware , we spotlight someone in the bleeding disorders community. This issue, we speak with Dawn...

My Journey

NHF-Baxter Clinical Fellow Profile: Jordan A. Shavit, MD, PhD

Accomplished pediatric researcher advances study of pediatric bleeding disorders. HemAware is conducting a series of interviews with recipients of the...

My Journey

A Family Affair

Isaac Orrante, 11, from Columbus, Ohio, and his parents talk about about his love for ballet.

My Journey