My Journey

Read the personal stories of individuals with inheritable blood and bleeding disorders in HemAware.

A Washington, DC, artist and teacher is using his talents to help the bleeding disorders community.
Nikole Scappe, who has von Willebrand disease (VWD), held a fundraiser for the National Hemophilia Foundation in support of the...
Daniela Delgado and her parents, Janine Achury and Nemorio Delgado created Daniela’s Little Wish, which delivers cakes to children with...
Federico Parres, a sophomore at Damien High School in LaVerne, CA, has severe hemophilia A and is part of Team...
Driven by love for her young grandson, Trish Griffith, of Knoxville, Tennessee, turned her network of friends and family members...
In each issue, we spotlight a member of the bleeding disorders community. Here, we spotlight Matti Vann, the woman behind...
In each issue of HemAware , we spotlight someone in the bleeding disorders community. This issue, we speak with LaRon...
In each issue of HemAware , we spotlight people in the bleeding disorders commu­nity. Here, we talk with ­Justin ­McClanahan...
In each issue of HemAware , we spotlight someone in the bleeding disorders community. This issue, we speak with Dawn...
Accomplished pediatric researcher advances study of pediatric bleeding disorders. HemAware is conducting a series of interviews with recipients of the...
Isaac Orrante, 11, from Columbus, Ohio, and his parents talk about about his love for ballet.
Christian Harris created a collection of clothing inspired by hemophilia—both his experience of living with it as well as its...
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