Voices for Change in the Bleeding Disorders Community Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia... Read More Advocacy, Community in Action Gene Therapy for Hemophilia A: What You Need to Know In the summer of 2023, the U.S. Food and Drug Administration (FDA) approved ROCTAVIAN (valoctocogene roxaparvovec-rvox), a gene therapy for... Read More Blood Safety What People with Bleeding Disorders Should Know About Possible Drug Interactions If you or your loved one takes a medication to control a bleeding disorder, you may already know that you... Read More Blood Safety Careers and Chronic Conditions Such as Bleeding Disorders Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation... Read More Advocacy, Community in Action Ask a Social Worker: Dealing with Unauthorized Disclosure Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker Ask a Social Worker: Finding Support When You Have an Extremely Rare Blood Disorder Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker Ask a Social Worker: How Can I Heal From Medical Trauma? Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker What Are PT and aPTT Tests? To diagnose a blood or bleeding disorder, healthcare providers use a variety of tests to identify whether someone’s blood is... Read More Blood Safety Ask a Social Worker: Help for Social Anxiety Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker Celebrating HTC Social Workers Social workers are essential members of the multidisciplinary care teams at hemophilia treatment centers (HTCs). As counselors and advocates for... Read More Ask a Social Worker How Bleeding Disorders Awareness Month Has Impacted the Community The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special... Read More NBDF in Action, Advocacy, 75th Anniversary What You Need to Know About Hemochromatosis Hemochromatosis, also known as iron overload disorder, is a condition in which people have too much iron in their blood... Read More Blood Safety Load More
