Advocacy

Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)...Read More

On May 19, 2016, more than 200 people gathered at Current at Chelsea Piers to celebrate the honorees of the...Read More

Efforts to raise awareness of health conditions have gotten more creative. The Ice Bucket Challenge brought prominence to the condition...Read More

The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC,...Read More

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...Read More

I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously...Read More

When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...Read More

Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...Read More

Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event,...Read More

The bleeding disorders community is a diverse one: There are parents ­startled by the diagnosis of an unexpected disorder in...Read More

What do a TV star, a juggler and a mock candidate for president of the United States have in common?...Read More

Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...Read More