Advocacy

Since it formally began in 2002, the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) has seen...Read More

Meet a few of the dedicated state-based advocates building strong partnerships to protect and improve the lives of people with...Read More

On March 7–9, 2018, hundreds of people from around the country converged on Washington, DC, for the National Hemophilia Foundation’s...Read More

On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...Read More

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...Read More

Against a backdrop of a possible repeal of the Affordable Care Act (ACA), the National Hemophilia Foundation’s (NHF) Washington Days...Read More

The minimum amount of clotting factor a country requires to avert death in life-threatening instances is 1 international unit (IU)...Read More

Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)...Read More

On May 19, 2016, more than 200 people gathered at Current at Chelsea Piers to celebrate the honorees of the...Read More

Efforts to raise awareness of health conditions have gotten more creative. The Ice Bucket Challenge brought prominence to the condition...Read More

The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC,...Read More

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...Read More