Advocacy

Advocacy

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...Read More
I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously...Read More
When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...Read More
Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...Read More
Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event,...Read More
The bleeding disorders community is a diverse one: There are parents ­startled by the diagnosis of an unexpected disorder in...Read More
What do a TV star, a juggler and a mock candidate for president of the United States have in common?...Read More
Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...Read More
It was December 1984, and Ryan White was a middle school student in Kokomo, Indiana. He’d just learned during hemophilia...Read More
In January, the National Hemophilia Foundation (NHF) announced the dedication of the NHF/Novo Nor­disk HANDI Library with a ribbon-cutting ceremony...Read More
On April 28, on the banks of the Hudson River, the National Hemophilia Foundation (NHF) welcomed 250 people to its...Read More
To be a successful advocate, you need key tools at your disposal, such as a way to voice your opinion...Read More
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