Advocacy

HemAware has everything you need to know about inheritable blood and bleeding disorders. Together, we fight for access to healthcare. Read now to learn more.

Community Heroes: Renita Johnson

As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders...

Community in Action, Advocacy

Illustration of tug of war between advocates and people in suits

Your Advocacy Efforts Count

A report from the bleeding disorders policy front lines.

Advocacy

The Banks family outside Rep. Jim Hines' office in Washington, DC

A Washington Days Diary

Advocate Jennifer Banks and her family's experience at NHF 2019 Washington Days.

Advocacy

Make a Difference for the Bleeding Disorders Community

The bleeding disorders community needs everyone to get involved.

Advocacy

Advocates from NHF's Washington Days 2019

The Secrets of Bleeding Disorders Advocacy

Washington Days attendees share their wisdom.

Advocacy

Landmarks in Bleeding Disorders Advocacy

Key moments in the history of bleeding disorders activism.

Advocacy

6 Ways to Celebrate Bleeding Disorders Awareness Month

Bleeding Disorders Awareness Month occurs each year during March. Get some ideas on how to celebrate, get involved, and raise...

Advocacy

Protect Yourself When Seeking Financial Assistance

When seeking financial assistance, it's important to make sure the organizations you're dealing with are legitimate.

Advocacy

Sen. Cory Booker with a bleeding disorders advocate

4 Ways to Become a Bleeding Disorders Community Advocate

You advocate for your kid—now take it to the next level.

Advocacy

Six Things to Think About When Choosing a Nonprofit to Support

6 Things to Think About When Choosing a Nonprofit to Support

Every year, thousands of nonprofits ask for donations. But how can you choose which one to give to?

Advocacy

Back to School: What Are IEPs and 504 Plans, and How Can They Help a Child with a Bleeding Disorder?

If you have school-age children (or you’re about to), you may have heard of 504 plans and IEPs. But you...

Family Matters, Advocacy

Group of youths at an NYLI teen retreat in Texas.

NYLI Alumni: The Next Generation of Bleeding Disorders Leaders

Since it formally began in 2002, the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) has seen...

Generation Next, Advocacy