Back to School: What Are IEPs and 504 Plans, and How Can They Help a Child with a Bleeding Disorder? If you have school-age children (or you’re about to), you may have heard of 504 plans and IEPs. But you...Read More Family Matters, Advocacy NYLI Alumni: The Next Generation of Bleeding Disorders Leaders Since it formally began in 2002, the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) has seen...Read More Generation Next, Advocacy Close to Home: The Critical Importance of State Advocacy Meet a few of the dedicated state-based advocates building strong partnerships to protect and improve the lives of people with...Read More Advocacy Young Bleeding Disorders Advocates Make a Difference On March 7–9, 2018, hundreds of people from around the country converged on Washington, DC, for the National Hemophilia Foundation’s...Read More Advocacy, Generation Next Inside Washington Days 2018 On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...Read More NHF in Action, Insurance, Advocacy After Approval: Ensuring the Safety of Bleeding Disorders Medicines Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...Read More Advocacy, Community in Action NHF’s Washington Days Advocacy Event Mobilizes on Healthcare Against a backdrop of a possible repeal of the Affordable Care Act (ACA), the National Hemophilia Foundation’s (NHF) Washington Days...Read More Advocacy Highlights of the WFH Humanitarian Aid Program The minimum amount of clotting factor a country requires to avert death in life-threatening instances is 1 international unit (IU)...Read More Advocacy March Is Now Bleeding Disorders Awareness Month Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)...Read More Advocacy 2016 Spring Soiree On May 19, 2016, more than 200 people gathered at Current at Chelsea Piers to celebrate the honorees of the...Read More Advocacy Seeing Red Efforts to raise awareness of health conditions have gotten more creative. The Ice Bucket Challenge brought prominence to the condition...Read More Advocacy Advocacy Depends on You The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC...Read More Advocacy Load More
