Advocacy

Training Tips

The National Hemophilia Foundation (NHF) provides training for its chapters and other community members to support its programs. As part...

Fighting for You, Advocacy

Coming Soon: Bleeding Disorders News on Your iPad

HemAware will soon be available in a new format—in an iPad app. Starting in fall 2013, you will be able...

Advocacy

Storming the Hill

Telling stories, especially personal ones, can be a powerful way to change the way people think. The National Hemophilia Foundation...

Advocacy, Advocacy

Excitement Builds for WFH 2016 World Congress in Miami

The World Federation of Hemophilia (WFH) World Congress will be held in the United States for the first time in...

Advocacy, Global Focus

Planning Ahead for Hemophilia

The National Hemophilia Foundation (NHF) conducted a daylong summit of hemophilia stakeholders on May 24, 2012, in Washington, DC, to...

Fighting for You, Advocacy

Bleeding disorders community is starting to develop a larger Internet presence

NHF Expands Online Offerings

Being diagnosed with a bleeding disorder can spark a lifetime of questions. As treatments, research, medical protocols and healthcare policy...

Advocacy, Advocacy

Learning the Advocacy Ropes

Advocacy is important to people with bleeding disorders. Many chapters have advocacy days, where members visit the state capitol to...

Community Pulse, Fighting for You, Advocacy, Chapter Roundup

Genotyping Education at Washington Days

Attendees at the 2012 National Hemophilia Foundation’s (NHF) Washington Days event received training on advocacy before meeting with their elected...

Fighting for You, Advocacy

HTC Funding Update

For the past three years, patients and their families at the National Hemophilia Foundation’s (NHF) Washington Days advocacy event have...

Fighting for You, Advocacy

Connect for Bleeding Disorders raises funds, awareness for bleeding disorders

NHF Establishes New Young Professionals Group

Connect for Bleeding Disorders is the National Hemophilia Foundation’s (NHF) new young professionals group, drawing people from various backgrounds. Members...

Generation Next, Advocacy, Advocacy

Green street sign with capital letter "H" and arrow pointing right underneath

Emergency Room Problems

Seven years ago, a big gust of wind off the Wyoming plains sent a piece of plywood flying, hitting the...

Advocacy, Taking Charge

Attendees of Hemophilia Foundation of Southern California (HFSC) Social Workers Forum

Increasing Awareness Through Providers

Approximately 15 social workers from Los Angeles–area hospitals gathered in January at the Hemophilia Foundation of Southern California (HFSC) Social...

Advocacy, Chapter Roundup