Advocacy

NHF to Host 2016 WFH World Congress in Miami

The National Hemophilia Foundation (NHF) is pleased to announce that it was awarded the bid to host the World Federation...

Community Pulse, Advocacy, Global Focus

Washington Days 2012

More than 300 members of the bleeding disorders community gathered in Washington, DC, on March 8 for NHF’s annual advocacy...

Advocacy, Advocacy

Twenty dollar bill rolled in prescription bottle next to stethoscope

Insurance and Healthcare Outlook for 2012

The US healthcare system is challenged by high costs during this tough economic period. Decisions about how to rein in...

Advocacy, Insurance, Family Matters

Researcher Support Critical to New Drug Development

The bleeding disorders community is in a unique period of drug development. Almost every pharmaceutical company currently producing factor products...

Researcher Profiles, Advocacy

Advocating for HTC Funding

Read about the history of HTC funding and the growing needs. With the federal deficit now in the trillions, one...

Advocacy

HTC History of Growing Needs and Financial Challenges

Read about advocacy efforts for the hemophilia treatment center network.

Advocacy

Approval Process for Biosimilars Examined by FDA

By now, most people with hemophilia and other bleeding disorders and their families know the Patient Protection and Affordable Care...

Hemophilia A&B, Advocacy

President Obama gives the State of the Union speech 2011

Could Healthcare Reform Be Repealed?

Repealing the 2010 healthcare reform law is on the agenda of many of the Republican and Tea Party representatives who...

Advocacy, Insurance

Washington Days 2011

Although few people relish public speaking, hitting a lifetime benefits cap or being denied access to insurance because of a...

Advocacy

Hemophilia Headlines

Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on...

Advocacy

NHF Washington Days Advocates Head to Capitol Hill

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing...

Advocacy

Two teenagers watch the TV show Royal Pains.

Hemophilia Takes Center Stage

Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time.

Hemophilia A&B, Advocacy