Advocacy

Hemophilia Headlines

Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on...

Advocacy

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing...

Advocacy

Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time.

Hemophilia A&B, Advocacy

Betty Jane Henry died at her home in Wellington, Florida, on Sunday, September 5, at the age of 93. She...

Advocacy, Community in Action

Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy

The US Department of Health and Human Services has unveiled Healthy People 2020, the nation’s new 10-year goals and objectives...

Hemophilia A&B, Fitness & Nutrition, Advocacy, Women's Bleeding Disorders

At the Opening Session of the National Hemophilia Foundations’s (NHF's) 62nd Annual Meeting in New Orleans on November 11, 2010...

Advocacy, Community in Action

While national healthcare reform passed in March, implementing it will occur in stages. The legislation is detailed and has many...

Advocacy, Insurance

In each issue of HemAware, we “Take 5” with people in the bleeding disorders community and spotlight their efforts with...

Advocacy, My Journey

A select group of hemophilia community leaders visited the National Hemophilia Foundation (NHF) national offices in New York City in...

Adults & Aging, Hemophilia A&B, Advocacy, Community in Action

Dave Meuleman, a materials engineer in his 50s from Canton, Michigan, stepped outside his comfort zone when he sat down...

Adults & Aging, Advocacy

In each issue of HemAware , we take a look at how local NHF chapters and associations are making a...

Advocacy, Chapter Roundup