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Featured On HemAware

Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.
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Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.
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How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Women and girls clinics are closing gaps with coordinated bleeding disorders care that spans every stage of life.
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How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Recent Articles

2026 Bleeding Disorders Conference Preview.jpg

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.

Rare Bleeding Disorders

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

It’s good to talk to a provider about your treatment options, even if what you’re doing is working.

Taking Charge, Adults & Aging

Rare bleeding disorder

Understanding Factor 1 Deficiency

When Emily Bartko, 4, of Las Vegas, was an infant, bruising came easily. All it took was the pressure from...

Rare Bleeding Disorders

Betty Jane and Bob Henry, co-founders of the National Hemophilia Foundation

NHF Co-Founder Betty Jane Henry Dies at 93

Betty Jane Henry died at her home in Wellington, Florida, on Sunday, September 5, at the age of 93. She...

Advocacy, Community in Action

Boy with hemophilia on playground

Hemophilia Prophylaxis Leads to Joint Health

Like thousands of other people with hemophilia A, 17-year-old Sean O’Connor lacks the genetic machinery to produce a working version...

Hemophilia A&B

FDA approves RiaSTAP

RiaSTAP Approved to Treat Factor I Deficiency

In January 2009, the US Food and Drug Administration (FDA) approved CSL Behring’s RiaSTAP™ for the treatment of acute bleeding...

Rare Bleeding Disorders

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)