Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

During her more than 30 years as a social worker at the hemophilia treatment center at Children’s Memorial Hospital in...
Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...
A few years ago, Janet Barone received a phone call from her son, Cameron, that led her to realize her...
Routine healthcare visits are being held up because of the pandemic, so many parents are missing their children’s annual hemophilia...
For many parents of children who are newly diagnosed with hemophilia, those first few months of treatment can seem like...
With families staying home during the COVID-19 pandemic, and the hecticness of everyday life toned down, many parents may be...
The COVID-19 pandemic has dramatically changed our lives in so many ways, and that’s especially true for families with young...
“Why did you leave that tailgate open?” Kelly Baker, of Bridgeport, Ohio, remembers snapping accusatorily at her husband, Josh. She...
The COVID-19 pandemic has many families on edge right now. Jobs are being cut, routines are disrupted, and with social...
Almost all teenagers and young adults wrestle at some point with the pressure to conform to an “ideal” body type...
Change is hard for everyone, but addressing it helps smooth the road ahead.
Getting braces or other orthodontic devices such as a retainer is a rite of passage for millions of kids (and...
Chat Icon
Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)