Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

If you have a child with a bleeding disorder, the relationship that your family forms with a hemophilia treatment center...
A roundup of helpful books about hemophilia and other bleeding disorders.
A solid team can ease stress for parents.
How to ensure children get the support they need.
Be your own or your child’s best advocate
If you have hemophilia or another bleeding disorder in your family tree, meeting with a genetic counselor is key.
Depending on when your child is diagnosed with a bleeding disorder, your first conversations with him or her about the...
Solutions for the biggest challenges.
Confusion is normal, but your child will be OK
In easily understood language, Raising a Child with Hemophilia covers such topics as medical treatment, genetic transmission, child development, consumer...
Fathers who share a bleeding disorder with their daughters play an important role in their lives.
Following the ABCs can help parents and caregivers ease the pain and anxiety of infusions.
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)