Family Matters

7 Must-Read Books for Newly Diagnosed Patients and Their Families

A roundup of helpful books about hemophilia and other bleeding disorders.

Family Matters

Build a Bleeding Disorder Support Network

A solid team can ease stress for parents.

Family Matters

Managing Bleeding Disorders: Children at School

Managing School and a Bleeding Disorder

How to ensure children get the support they need.

Family Matters

Male doctor shaking hands with male patient

How to Get the Most out of an HTC Visit

Be your own or your child’s best advocate

Family Matters

What to Expect at a Genetic Counseling Meeting

If you have hemophilia or another bleeding disorder in your family tree, meeting with a genetic counselor is key.

Family Matters

What parents say—and don’t say—can make a big difference in how children handle their condition

Talking to Kids About Bleeding Disorders

Depending on when your child is diagnosed with a bleeding disorder, your first conversations with him or her about the...

Family Matters

Hispanic Families in the Bleeding Disorders Community

Solutions for the biggest challenges.

Family Matters

Bleeding Disorders in Children: 10 Things Parents Should Know

Confusion is normal, but your child will be OK

Family Matters

Raising a Child with Hemophilia: A Practical Guide for Parents

In easily understood language, Raising a Child with Hemophilia covers such topics as medical treatment, genetic transmission, child development, consumer...

Family Matters

Strengthening the Father-Daughter Bleeding Disorder Bond

Fathers who share a bleeding disorder with their daughters play an important role in their lives.

Family Matters

The ABCs of Managing Infusions for Children with Bleeding Disorders

Following the ABCs can help parents and caregivers ease the pain and anxiety of infusions.

Family Matters

Ties That Bond

“When Jorge was diagnosed, our family was diagnosed,” Cristina says. “We were going to figure this out together.”

Family Matters