Living with Bleeding Disorders in the Time of COVID The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...Read More Family Matters, My Journey, Community in Action How to Create a Hemophilia Emergency Preparedness Plan for Your Child If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...Read More Family Matters, Taking Charge What Parents Should Know About Telehealth Appointments Michelle Culpepper usually has to drive her son Jayden 45 minutes each way from their home in Farmington, Michigan, to...Read More Family Matters Helping Families Empower Themselves During her more than 30 years as a social worker at the hemophilia treatment center at Children’s Memorial Hospital in...Read More Family Matters Far and Away: Living with Bleeding Disorders in Remote Areas Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...Read More Family Matters, Taking Charge Your Guide to Strength Training Strength training is an important part of a comprehensive exercise program, especially as you get older. It not only builds...Read More Fitness & Nutrition, Adults & Aging How Parents of Children with Bleeding Disorders Can Adapt to Changing Roles A few years ago, Janet Barone received a phone call from her son, Cameron, that led her to realize her...Read More Family Matters What to Do if You Miss Your Child’s Annual Exam Routine healthcare visits are being held up because of the pandemic, so many parents are missing their children’s annual hemophilia...Read More Family Matters Parents’ Guide to CVADs For many parents of children who are newly diagnosed with hemophilia, those first few months of treatment can seem like...Read More Family Matters 11 Clues Your Child Is Ready for Self-Infusion With families staying home during the COVID-19 pandemic, and the hecticness of everyday life toned down, many parents may be...Read More Family Matters, Taking Charge Fun Activities to Do with Your Kids at Home The COVID-19 pandemic has dramatically changed our lives in so many ways, and that’s especially true for families with young...Read More Family Matters Financial Literacy Can Help Young Adults Offset the Costs of Living with Hemophilia It can be tough as a young adult to get by financially—it’s not just that you want to go out...Read More Generation Next Load More
