Taking Charge

Taking Charge

Take charge and become your best self-advocate! Get tips and tricks here.

Taylor Frank, 13, of Lake Forest, California, doesn't let severe hemophilia A stop him from pursuing his interests. The rising...
Jane Forbes has spent a lot of time teaching her four teenage sons how to manage their severe hemophilia A...
Every 10 years since 1980, the US Department of Health and Human Services (HHS) has issued a progress report on...
Mary Ellen Ciganovich, 59, works out nearly every day, but for her, exercise is anything but routine. She engages in...
During the last few months, Americans have experienced wildfires, tornadoes, hurricanes, flash floods and earthquakes. If a disaster strikes your...
The “captain of the school army” had Dylan Edwards in his sights. He ordered his “soldiers” to chase Dylan, who...
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...
Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...
Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The...
Twenty-three seconds. That’s the time it took for Jesse Owens to break the world record in the 220-yard low hurdles...
Huma Siddiqui of Madison, Wisconsin, has been in the US for a dozen years, but one of the things that...
When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia...
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