Take charge and become your best self-advocate! Get tips and tricks here. Physical Therapy and Aquatic Therapy In the past, people with bleeding disorders have been told to proceed with caution with some types of physical therapy... Read More Fitness & Nutrition, Pain Management, Taking Charge A Focus on Inhibitors For people with hemophilia with inhibitors, managing their bleeding disorders can have unique challenges. Their immune system treats clotting factor... Read More Taking Charge, Taking Charge Emergency Room Problems Seven years ago, a big gust of wind off the Wyoming plains sent a piece of plywood flying, hitting the... Read More Advocacy, Taking Charge Health Benefits of the Outdoors Taylor Frank, 13, of Lake Forest, California, doesn't let severe hemophilia A stop him from pursuing his interests. The rising... Read More Mind & Body, Fitness & Nutrition, Taking Charge Online Reputation Jane Forbes has spent a lot of time teaching her four teenage sons how to manage their severe hemophilia A... Read More Taking Charge, Family Matters Government Issues Latest “Healthy People” Report Every 10 years since 1980, the US Department of Health and Human Services (HHS) has issued a progress report on... Read More Mind & Body, Taking Charge Speed Racer Mary Ellen Ciganovich, 59, works out nearly every day, but for her, exercise is anything but routine. She engages in... Read More Mind & Body, Fitness & Nutrition, Taking Charge National Preparedness Month and Hemophilia During the last few months, Americans have experienced wildfires, tornadoes, hurricanes, flash floods and earthquakes. If a disaster strikes your... Read More Taking Charge Battling Bullies The “captain of the school army” had Dylan Edwards in his sights. He ordered his “soldiers” to chase Dylan, who... Read More Hemophilia A&B, Von Willebrand Disease, Taking Charge, Family Matters ER Form for Bleeding Disorders An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge Hemophilia Treatment Centers 101 Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy Discussing Your Bleeding Disorder with Your Boyfriend Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The... Read More Von Willebrand Disease, Taking Charge Load More
