Taking Charge

Taking Charge

Take charge and become your best self-advocate! Get tips and tricks here.

During the last few months, Americans have experienced wildfires, tornadoes, hurricanes, flash floods and earthquakes. If a disaster strikes your...
The “captain of the school army” had Dylan Edwards in his sights. He ordered his “soldiers” to chase Dylan, who...
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...
Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...
Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The...
Twenty-three seconds. That’s the time it took for Jesse Owens to break the world record in the 220-yard low hurdles...
Huma Siddiqui of Madison, Wisconsin, has been in the US for a dozen years, but one of the things that...
When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia...
Throughout his life, Dan Bond has offered his time and body to the cause of science. The Galveston, Texas, engineer...
Access ongoing clinical trials now.
Katherine Spacek has never had to use the patient assistance program offered by the manufacturer of the clotting factor used...
Ray Stanhope may be the one in his family with hemophilia, but he’s not the only one who deals with...
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Contact The Neil Frick Resource Center (NFRC)