Take charge and become your best self-advocate! Get tips and tricks here. National Preparedness Month and Hemophilia During the last few months, Americans have experienced wildfires, tornadoes, hurricanes, flash floods and earthquakes. If a disaster strikes your... Read More Taking Charge Battling Bullies The “captain of the school army” had Dylan Edwards in his sights. He ordered his “soldiers” to chase Dylan, who... Read More Hemophilia A&B, Von Willebrand Disease, Taking Charge, Family Matters ER Form for Bleeding Disorders An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge Hemophilia Treatment Centers 101 Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy Discussing Your Bleeding Disorder with Your Boyfriend Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The... Read More Von Willebrand Disease, Taking Charge How to Talk to Your Doctor Twenty-three seconds. That’s the time it took for Jesse Owens to break the world record in the 220-yard low hurdles... Read More Taking Charge Culture Clash Huma Siddiqui of Madison, Wisconsin, has been in the US for a dozen years, but one of the things that... Read More Taking Charge Manage Hemophilia with a Personal Health Record When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia... Read More Hemophilia A&B, Taking Charge Power to the People Throughout his life, Dan Bond has offered his time and body to the cause of science. The Galveston, Texas, engineer... Read More Hemophilia A&B, Rare Bleeding Disorders, Taking Charge Clinical Trials 101 Access ongoing clinical trials now. Read More Hemophilia A&B, Taking Charge Patient Assistance Programs Katherine Spacek has never had to use the patient assistance program offered by the manufacturer of the clotting factor used... Read More Taking Charge, Insurance GINA Protects People from Bias Ray Stanhope may be the one in his family with hemophilia, but he’s not the only one who deals with... Read More Taking Charge, Advocacy Load More
