My Life, Our Future: With Every Yes, Progress

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Tiny Puzzle Pieces

I have never felt whole. This isn’t a devastating fact; it’s just what it is. When you receive diagnoses, go...

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Consistent protection with as few as 6 injections a year*

Qfitlia™ (fitusiran) prophylaxis helps your blood's ability to clot by lowering a protein called antithrombin

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Thank You for Being a Friend

It was a Tuesday morning like any other Tuesday morning for me. I was watching the local news and having...

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Hemo Parents Unite!

I have one particularly well-meaning friend who whenever complaining about her own kids' woes, inserts the disclaimer: "I know it's...

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Insist Your Child Wear a Medical Alert ID. No Excuses!

“MedicAlerts® are the ultimate fashion accessory,” said no one ever. Wearing your heart on your sleeve, or your medical history...

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Scans in Demand

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NHF Support Grows

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A World of Difference

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Talk Early, Honestly and Often

I gained 60 pounds with my first pregnancy. Steaks, whole milk and ice cream were my new BFFs and on...

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Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC