Search Stories | HemAware

How to Balance Household Responsibilities

A child’s bleeding disorder can strain families. Sharing responsibilities, communicating clearly, and seeking support can help couples stay strong and...

Family Matters

Hemophilia Prophylaxis Leads to Joint Health

Like thousands of other people with hemophilia A, 17-year-old Sean O’Connor lacks the genetic machinery to produce a working version...

Hemophilia A&B

Hemophilia Look Back

For Mike O’Connor, attending college as a young man with hemophilia in the late 1970s and early 1980s meant forging...

Generation Next, Adults & Aging

Rare Finds

They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only...

Community in Action

Factor XI Deficiency Facts

Blame it on the Girl Scout cookie. That’s what Josh Beck, 27, of Franklin, Wisconsin, was eating when he was...

Rare Bleeding Disorders

The Overlooked Cause of Abnormal Menstrual Bleeding

Many women accept excessive, prolonged periods as an annoying but ordinary part of being female—putting up with the monthly stress...

Von Willebrand Disease, Women's Bleeding Disorders

Off to the Races

HemAware “Takes 5” with people in the bleeding disorders community and spotlights their efforts with just five questions. Here, we...

My Journey

Vanya Green and a teenage boy with guitar for music therapy

Music Therapy Used for Pain Management

Plucking the strings of a harp proved to be therapeutic more than 2,800 years ago. The Bible records that when...

Pain Management

Memory Aid

Read about Haight's stepson's diagnosis and learn more about mild hemophilia.

My Journey, Community in Action

NHF-Shire Clinical Fellow Profile: Eric Mullins, MD

This interview was conducted with Eric Mullins, MD, assistant professor, University of Cincinnati Department of Pediatrics. He is a pediatric...

Researcher Profiles

Community Heroes: Renita Johnson

As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders...

Community in Action, Advocacy

A piece of art depicting a multicultural group of professional women.

Women with Bleeding Disorders: How to Be Your Own Best Patient Advocate

For years, doctors dismissed Lisa Webb’s heavy bleeding as just something that women in her family had to endure. Despite...

Women's Bleeding Disorders, Advocacy