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Gene Therapy: The New Reality
After decades of research, gene therapy for hemophilia is here—but questions remain.
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Novel Technologies
Reaching Out to Local Chapters
Running a local chapter for the bleeding disorders community is no easy task. Most of the National Hemophilia Foundation’s (NHF’s)...
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Chapter Roundup
Dogs' Priceless Contribution to Hemophilia Research
Russell Crowe is expertly groomed and soaks up attention from adoring caretakers. He also gets chew toys. Russell is a...
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Hemophilia A&B
Camps for Kids with Bleeding Disorders
See the NHF Camp Directory. Daniel Birgy didn’t want to go to camp. The doctors and nurses at his hemophilia...
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Family Matters
Recognizing Racial and Ethnic Health Disparities in Black and Latinx Communities
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
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Community in Action
Aging with Hemophilia
When Ed Wilson was three years old and already diagnosed with hemophilia, doctors told his parents he wouldn’t live past...
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Adults & Aging
Total Knee Replacement Surgery Takes a Team
Pain. It is the No. 1 reason people with bleeding disorders consider total knee replacement surgery.
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Surgery & Transplants
Sea Change
Update, October 22, 2015: The US Food and Drug Administration (FDA) issued a warning that AbbVie’s Viekira Pak ® and...
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Novel Technologies
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Hepatitis C
Home Sweet Dental Home
Read Finding a Dentist Who Treats People With Bleeding Disorders. Making dental care part of your family’s daily routine takes...
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Family Matters
Lifting the Covers on Alternative Pain Remedies
Traditional medicine has made some giant strides in treating hemophilia. Yet for a variety of reasons, some patients choose to...
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Pain Management
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Alternative Treatments
Head Bleeds and Hemophilia
Hogan Lust started walking last month. He’s two and a half years old. For the tow-headed toddler from Tucson, that...
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Hemophilia A&B
Hepatitis C and Hemophilia
In May 2011, the FDA approved boceprevir (trade name Victrelis) and telaprevir (trade name Incivek), both protease inhibitors. Learn more...
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Hepatitis C
Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
Contact NFRC