HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

When you turn 18, you can exercise your right to vote. At 21, you can legally purchase alcohol. And when...

Generation Next

On March 7–9, 2018, hundreds of people from around the country converged on Washington, DC, for the National Hemophilia Foundation’s...

Advocacy, Generation Next

On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...

NBDF in Action, Insurance, Advocacy

On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding...

NBDF in Action

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)