HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.
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2026 Bleeding Disorders Conference Preview
Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.
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Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Recent Articles

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.

NBDF in Action

Two advocates, pose with an older man in a suit and tie inside a legislative office decorated with flags and framed photos, during a Washington Days advocacy visit.

Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.

Advocacy

A family of four wearing helmets rides bicycles together on a wooded trail, smiling and enjoying an active outing.

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.

Taking Charge, Family Matters

Adults and kids with bleeding disorders can and should get the flu shot

It's Not Too Late to Protect Yourself From the Flu - And Yes, You Can Still Get It!

If you’re feeling under the weather, with a fever and muscle aches, you may have joined the millions who have...

Taking Charge

3 Ways to #ShowYourRare on Rare Disease Day 2018

On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations...

Community in Action

Non-drug methods may help manage bleeding-disorders-related pain

4 Mind-Body Pain Management Techniques to Try

For too many people with a bleeding disorder, pain isn’t well-managed. The landmark Haemophilia Experiences, Results and Opportunities (HERO) international...

Pain Management

Chris Bombardier: Reaching New Heights

How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.

Taking Charge, My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

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HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Recent Articles