HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM.

Chapter Roundup

Longtime NBDF supporters Kim and Scott Martin are founding donors to the foundation’s venture philanthropy fund.

Advocacy

As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.

My Journey

The end of life is something few people want to discuss. But planning can ensure that your wishes are met.

Adults & Aging

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)