HemAware

Featured On HemAware

Ask a Social Worker: Why You Need an HTC Appointment Before a Factor Refill

Learn why hemophilia treatment centers require regular visits before refilling factor for procedures.
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Ask a Social Worker: Why You Need an HTC Appointment Before a Factor Refill
Advice for Parents Sending a Child with a Bleeding Disorder to Camp for the First Time

Tips for parents on how to prepare their child with a bleeding disorder for their first sleepaway camp experience.
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Three Tips on How to Open Up to Your Comprehensive Care Team

Being open and honest with providers can be good for your health. Here are tips to help you do that.
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These tools can help you measure your heart rate, track healthy meals, build consistent fitness routines, and more.

Taking Charge

Longtime attendees of NBDF’s annual conference share their favorite memories and why BDC means so much to them.

NBDF in Action

These five factors can contribute to depression, anxiety, and stress, especially if you have a chronic health condition.

Taking Charge, Fitness & Nutrition

A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024.

NBDF in Action

In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM.

Chapter Roundup

Longtime NBDF supporters Kim and Scott Martin are founding donors to the foundation’s venture philanthropy fund.

Advocacy

As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.

My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)