HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.

Taking Charge, Family Matters

An HTC social worker explains why taking a break is a health need — not something to feel guilty about.

Taking Charge, Ask a Social Worker

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.

Novel Technologies, Hemophilia A&B

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.

Women's Bleeding Disorders, Novel Technologies, Alternative Treatments

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)