HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.
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Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.
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Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Recent Articles

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.

NBDF in Action

Two advocates, pose with an older man in a suit and tie inside a legislative office decorated with flags and framed photos, during a Washington Days advocacy visit.

Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.

Advocacy

A family of four wearing helmets rides bicycles together on a wooded trail, smiling and enjoying an active outing.

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.

Taking Charge, Family Matters

Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Heavy periods with a bleeding disorder are common, and there are safe, private options to help teens manage them.

Ask a Social Worker

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

Ask a Social Worker: How Can I Handle Constant Upsetting News?

Practical ways to stay grounded when constant news and uncertainty feel overwhelming.

Family Matters

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC

HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Recent Articles