HemAware

Featured On HemAware

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.
Read More
Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.
Read More
Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.
Read More

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

An HTC social worker explains why taking a break is a health need — not something to feel guilty about.

Taking Charge, Ask a Social Worker

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.

Novel Technologies, Hemophilia A&B

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.

Women's Bleeding Disorders, Novel Technologies, Alternative Treatments

Lilliam Bervis’s first period lasted a month. She gets nosebleeds when she spends too much time in the sun. She...

In 1987, when people found out Shawn Decker was HIV-positive, he was shunned. School administrators quietly ushered the 11-year-old out...

HIV

Pain has many forms. For Leland Smith, 16, who has severe hemophilia A with an inhibitor, sometimes it feels like...

Pain Management

In each issue of HemAware , we take a look at how local NHF chapters and associations are making a...

Chapter Roundup

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)