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Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

Researchers presented a range of findings on the subject.

Hemophilia A&B

People in the bleeding disorders community are no strangers to blood tests. They give blood samples routinely at comprehensive treatment...

Hemophilia A&B, Von Willebrand Disease, Blood Safety

Rachel Miller, 21, who has von Willebrand disease, attended two years of community college and lived at home before enrolling...

Generation Next, Family Matters

Renee Embry has a platelet dysfunction and Ehlers-Danlos syndrome, but that doesn’t stop her from getting out on the water.

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)