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Featured On HemAware
Why Women and Girls with Bleeding Disorders Have Been Overlooked
Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.
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Why Women and Girls with Bleeding Disorders Have Been Overlooked
Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
Often misdiagnosed, HHT can cause anemia and sometimes organ damage.
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Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
How to Build Your Child’s Confidence When They Have a Bleeding Disorder
Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.
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How to Build Your Child’s Confidence When They Have a Bleeding Disorder
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2026 Bleeding Disorders Conference Preview
Here’s a sampling of the sessions you can look forward to at BDC.
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NBDF in Action
Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment
We answer some of the most common questions about this rare bleeding disorder.
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Rare Bleeding Disorders
As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too
It’s good to talk to a provider about your treatment options, even if what you’re doing is working.
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Taking Charge
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Adults & Aging
Careers and Chronic Conditions Such as Bleeding Disorders
Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation...
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Advocacy
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Community in Action
Better Bleeding Disorders Care Begins with You
When it comes to chronic and life-changing medical conditions, better care starts with better research. Until a few years ago...
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Taking Charge
Hemophilia and Heart Health: Balanced Cardiac Care
The minute Pedro Estalilla came home from his job as a database administrator one day in 2018, his wife, Diana...
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Fitness & Nutrition
National Hemophilia Foundation and the Kosovo Hemophilia Foundation: A Perfect Pairing
Dawn Rotellini vividly remembers her first trip to Kosovo in 2019. The National Hemophilia Foundation’s chief operating officer, who is...
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NBDF in Action
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
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