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Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Recent Articles

Hereditary Hemorrhagic Telangiectasia More Than Just Nosebleeds

Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Women and girls clinics are closing gaps with coordinated bleeding disorders care that spans every stage of life.

Women's Bleeding Disorders, Advocacy

Advice for parents.

Parents in the Bleeding Disorders Community Share Their Best Advice

HemAware asked parents for their best advice on what has helped them navigate their children’s bleeding disorders in the first...

Family Matters

What Women with Bleeding Disorders Need to Know About Abortion

What Women with Bleeding Disorders Need to Know About Abortion

Recently, HemAware received a question for our “Ask a Social Worker” column about having an abortion if you have a...

Women's Bleeding Disorders

Ask a Social Worker: Is It Safe for Me to Have an Abortion?

Ask a Social Worker: Is It Safe for Me to Have an Abortion?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Women's Bleeding Disorders, Ask a Social Worker

Bleeding Disorders: What Your Pain Is Trying to Tell You

Bleeding Disorders: What Your Pain Is Trying to Tell You

Unfortunately, people with hemophilia are no strangers to pain and its many forms. Pain can vary in intensity and areas...

Pain Management

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)