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Featured On HemAware

Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program?

A coalition can help you get the care you need for substance use disorder or a mental health issue.
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Clinical Trials for Hemophilia and Other Bleeding Disorders

Learn how clinical trials work and how to find studies that may be right for you.
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3 Critical Conversations to Have with Your HTC Social Worker

Opening up about insurance, loneliness, and other challenges can benefit you. Here are three conversations to have.
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Recent Articles

WFH 2025 Comprehensive Care Summit Brings Global Experts to Dubai

The event brings together medical and musculoskeletal (MSK) professionals, bleeding disorders patients, and community advocates.

Global Focus

In Memory of Neil Frick: Honoring His Dedication to the Bleeding Disorders Community

A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024.

NBDF in Action

Consistent protection with as few as 6 injections a year*

Qfitlia™ (fitusiran) prophylaxis helps your blood's ability to clot by lowering a protein called antithrombin

My Bleeding Disorders Community (MyBDC): For You, By You

For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices...

Community in Action

Illustration of researchers, regulators and community members involved in bleeding disorders research

A New Plan for Tackling Inhibitors

In May 2018, more than 200 people representing scientific researchers, hemophilia patients, advocates, clinicians and the pharmaceutical industry gathered in...

Novel Technologies

LiveSmart PlaySmart founder Brian Ragishis dribbles a soccer ball on a field.

LiveSmart PlaySmart: An Online Community for Kids with Bleeding Disorders

Brian Ragaishis is a high school senior in New York City who was diagnosed with von Willebrand disease at age...

Generation Next

A New Way to Look at Exercise

Americans get so many messages about the role of exercise in our health. We’re told that it can strengthen our...

Fitness & Nutrition

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC