HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
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How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.
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How to Choose the Right Hemophilia Treatment Options for You

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

Understanding more about your period can help you have greater control over your health, especially when managing a bleeding disorder.

When the days get shorter and the temperature drops, winter health problems can crop up—everything from the usual cold and...

There’s one good thing about shoveling snow: It counts as exercise! But it’s hard work; more than 137,000 people received...

When you have a bleeding disorder, staying on top of treatment regimens can prevent devastating consequences. Adherence is associated with...

Carter Lantz, who was diagnosed with hemophilia A at age 2, learned to self-infuse factor at a hemophilia camp when...

Taking Charge

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)