HemAware

Featured On HemAware

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control bleeding.
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What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care
Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.
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Von Willebrand Disease Treatment: What’s New and Next?
Ask a Social Worker: How Can I Handle Constant Upsetting News?

Practical ways to stay grounded when constant news and uncertainty feel overwhelming.
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Recent Articles

Brian Andrew: Working Toward a Brighter Future

Learn how one leader’s unexpected cause has turned into a passion for service.

Community in Action

Waylon Page: “Kids Can Make a Difference”

Diagnosed with a rare bleeding disorder at age 4, Waylon Page has been a powerful advocate and change maker.

My Journey

The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

My Bleeding Disorders Community (MyBDC): For You, By You

For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices...

Community in Action

Illustration of researchers, regulators and community members involved in bleeding disorders research

A New Plan for Tackling Inhibitors

In May 2018, more than 200 people representing scientific researchers, hemophilia patients, advocates, clinicians and the pharmaceutical industry gathered in...

Novel Technologies

LiveSmart PlaySmart founder Brian Ragishis dribbles a soccer ball on a field.

LiveSmart PlaySmart: An Online Community for Kids with Bleeding Disorders

Brian Ragaishis is a high school senior in New York City who was diagnosed with von Willebrand disease at age...

Generation Next

A New Way to Look at Exercise

Americans get so many messages about the role of exercise in our health. We’re told that it can strengthen our...

Fitness & Nutrition

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

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