HemAware

Featured On HemAware

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control bleeding.
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What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care
Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.
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Ask a Social Worker: How Can I Handle Constant Upsetting News?

Practical ways to stay grounded when constant news and uncertainty feel overwhelming.
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Learn how one leader’s unexpected cause has turned into a passion for service.

Diagnosed with a rare bleeding disorder at age 4, Waylon Page has been a powerful advocate and change maker.

My Journey

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

"It’s been transformative to see the care and the changes that have occurred in the time I’ve been doing this."

"I think I’m a better nurse because of the types of patients I’ve taken care of, in hemophilia and oncology."

"To know that you somehow made a difference in that family...that’s a very fulfilling feeling."

NHF-Shire Clinical Fellowship Program award recipients are committed to bleeding disorders clinical care and research.

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)