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Featured On HemAware

Period Tracking Apps and Privacy: What Women with Bleeding Disorders Should Know

Menstruation tracking is a valuable tool. Experts say to be vigilant in what information you share.
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Period Tracking Apps and Privacy: What Women with Bleeding Disorders Should Know
Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life

The rare condition usually affects people in their 70s and 80s without warning. Here’s what you need to know.
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Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life
Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Heavy periods with a bleeding disorder are common, and there are safe, private options to help teens manage them.
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Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Recent Articles

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

The Mental Health Challenge of Inhibitors

Maintaining or improving one’s emotional health is vital for people with inhibitors.

Taking Charge, Taking Charge

Finding Their Voices

How four members of the bleeding disorders community faced mental health challenges and found ways to thrive.

Taking Charge, My Journey

Hands putting puzzle pieces together to create a human head

Putting the Spotlight on Mental Health and Bleeding Disorders

Help is available both in the bleeding disorders community and beyond.

Taking Charge

Spotlight on HTC Nurses: James Munn, RN-BC, BS, BSN, MS

"It’s been transformative to see the care and the changes that have occurred in the time I’ve been doing this."

Community in Action

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC