Rare Bleeding Disorders

Rare Bleeding Disorders

What exactly is a rare bleeding disorder, and what makes a bleeding disorder rare? Get the answers in HemAware.

When certified nursing assistant Julie Seminara injured herself while moving a nursing home patient back in 2001, her problems seemed...
Emergency room sign
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...
Teresa D’Ambrosio (right) and her sister as children
Read more about the D'Ambrosios in stepmom Cheryl's own words, in our Community Voices section. A hangnail hardly constitutes a...
Cheryl Nineff D’Ambrosio
Read more about this family's experience in the Factor V Deficiency article. Both my stepdaughters were born with severe factor...
Child with factor VII deficiency plays with yarn
Skye Peltier’s life changed on a playground when she was 5 years old. After going down a slide, she lingered...
Rare bleeding disorder
When Emily Bartko, 4, of Las Vegas, was an infant, bruising came easily. All it took was the pressure from...
FDA approves RiaSTAP
In January 2009, the US Food and Drug Administration (FDA) approved CSL Behring’s RiaSTAP™ for the treatment of acute bleeding...
Factor XIII Deficiency
Update, January 2014: On December 23, 2013, the FDA approved Tretten, Coagulation Factor XIII A-Subunit (Recombinant), which is the first...
Factor XI Deficiency
Blame it on the Girl Scout cookie. That’s what Josh Beck, 27, of Franklin, Wisconsin, was eating when he was...
Doctor with mom and little girl at a hemophilia treatment center
Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...
Hospital Emergency Room sign
When Murali Pazhayannur slipped while getting into a rickshaw during a Calcutta monsoon, he had no inkling he’d still be...
Whiteboard
The National Hemophilia Foundation (NHF) has counterparts across the country advocating for the needs of patients with blood disorders ranging...
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.