Advocating for Yourself in the ER with VWD The emergency room can be an overwhelming place in the best of circumstances. But women diagnosed with von Willebrand disease...Read More Von Willebrand Disease Well-Grounded Guideline The comprehensive care model is ideal for people with hemophilia.Read More Hemophilia A&B, Von Willebrand Disease MASAC’s Work in VWD The complexities of VWD diagnosis and treatment require evaluation and management by an HTC, a trained hematologist, and the dedication...Read More Von Willebrand Disease Treatment Breakthroughs The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...Read More Research & Treatment, Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease von Willebrand Chain Reaction Researchers at Washington University School of Medicine in St. Louis have discovered that von Willebrand factor (VWF), which helps the...Read More Von Willebrand Disease, Women's Health, Women's Bleeding Disorders Clean Cut The same material that helps stop nasty nosebleeds also curtails cuts. In June 2011, NasalCEASE®, an over-the-counter product manufactured by...Read More Hemophilia A&B, Von Willebrand Disease Sex Talk Discussing intimacy issues when you're a woman with a bleeding disorder.Read More Von Willebrand Disease, Women's Bleeding Disorders Battling Bullies The “captain of the school army” had Dylan Edwards in his sights. He ordered his “soldiers” to chase Dylan, who...Read More Hemophilia A&B, Von Willebrand Disease, Taking Charge, Family Matters ER Form for Bleeding Disorders An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge NHF on New York Morning Show National Hemophilia Foundation CEO Val D. Bias and New York City nightlife photographer Patrick McMullan called attention to women’s bleeding...Read More Von Willebrand Disease, Community in Action, Women's Bleeding Disorders A Second Diagnosis Parents of children with hemophilia and other bleeding disorders are very familiar with the routines and challenges that come with...Read More Hemophilia A&B, Von Willebrand Disease, Family Matters First-Timers’ Perceptions of the NHF Annual Meeting The National Hemophilia Foundation’s (NHF’s) Annual Meeting in November 2010 was our first NHF meeting. We were all excited to...Read More Von Willebrand Disease, Community in Action Load More
