Von Willebrand Disease

A Second Diagnosis

Parents of children with hemophilia and other bleeding disorders are very familiar with the routines and challenges that come with...

Hemophilia A&B, Von Willebrand Disease, Family Matters

First-Timers’ Perceptions of the NHF Annual Meeting

The National Hemophilia Foundation’s (NHF’s) Annual Meeting in November 2010 was our first NHF meeting. We were all excited to...

Von Willebrand Disease, Community in Action

Jill R. Birdwhistell and Kimber Blackwell

Forward March

Despite seeking treatment for her symptoms for years, Jill R. Birdwhistell, PhD, was never diagnosed with a bleeding disorder. Heavy...

Von Willebrand Disease, Women's Bleeding Disorders

Victory for Women

The National Hemophilia Foundation (NHF) wants all women in the US to be able to raise their fingers in the...

Von Willebrand Disease, Carriers, Women's Bleeding Disorders

Iron Butterfly

Connie McMullan’s kitchen is a testament to the things she holds dear: a collection of stuffed bears, glass angels that...

Von Willebrand Disease, Women's Bleeding Disorders

DDAVP for von Willebrand Disease

“One and two and flip.” Lilliam Bervis thinks out loud, concentrating on her partner’s precise and rhythmic steps as the...

Von Willebrand Disease, Women's Bleeding Disorders

Doctor with mom and little girl at a hemophilia treatment center

Hemophilia Treatment Centers 101

Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy

All About Nosebleeds

People with bleeding disorders get nosebleeds, which can usually be treated at home. But it’s a good idea to know...

Hemophilia A&B, Von Willebrand Disease

Discussing Your Bleeding Disorder with Your Boyfriend

Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The...

Von Willebrand Disease, Taking Charge

Refrigerator for storing hemophilia factor

Safely Storing Factor at Home

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or...

Hemophilia A&B, Von Willebrand Disease, Family Matters

MASAC Releases New Recommendations

The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) met April 17–18 in Chicago and issued four recommendations...

Hemophilia A&B, Von Willebrand Disease, Blood Safety

NHF Attends First National Blood Disorders Conference

The National Hemophilia Foundation (NHF) has counterparts across the country advocating for the needs of patients with blood disorders ranging...

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease