Filter By Topic75th AnniversaryFamily MattersFitness & NutritionHemophilia A&BInsuranceNovel TechnologiesWomen's Bleeding DisordersBlood SafetyCarriersChapter RoundupGeneration NextHepatitis CSurgery & TransplantsTaking ChargeAdults & AgingAdvocacyHIVNBDF in ActionPain ManagementResearcher ProfilesAlternative TreatmentsAsk a Social WorkerCommunity in ActionHemAware JuniorRare Bleeding DisordersGlobal FocusVon Willebrand DiseaseMy JourneySponsored ContentLifeMind & BodyWomen's HealthBleeding Disorders A-ZResearch & TreatmentFighting for YouCommunity Pulse March Is Now Bleeding Disorders Awareness Month Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)... Read More Advocacy Above and Beyond “THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as... Read More Advocacy Support for Local Chapters I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously... Read More Advocacy Blood Donor Deferral Policy The National Hemophilia Foundation (NHF) commends the US Food and Drug Administration (FDA) for initiating development of a national blood... Read More Blood Safety Information for All Providers When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician... Read More Advocacy Research and Education Work Together Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for... Read More Advocacy Teachable Moments When Michelle Rice’s older son, Lance, was 5 days old, he had an intracranial hemorrhage and spent three weeks in... Read More Advocacy A Group Effort Bills that come up for a vote in Washington, DC, often stall as they get defeated repeatedly on the US... Read More Fighting for You United in Progress The National Hemophilia Foundation (NHF) is excited to welcome the bleeding disorders community to its 65th Annual Meeting October 3–5... Read More Advocacy NHF Expands Online Offerings Being diagnosed with a bleeding disorder can spark a lifetime of questions. As treatments, research, medical protocols and healthcare policy... Read More Advocacy, Advocacy NHF Walk Program Celebrates 5th Birthday It has been five years since the National Hemophilia Foundation (NHF) launched its Hemophilia Walk program, starting with five walks... Read More NBDF in Action, NBDF in Action HTC Funding Update For the past three years, patients and their families at the National Hemophilia Foundation’s (NHF) Washington Days advocacy event have... Read More Fighting for You, Advocacy Load More
