In-depth profiles and stories about people in the bleeding disorders community. Red-Letter Campaign In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National... Read More Community in Action ‘I’m a Nurse Because of My Bleeding Disorder’ I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K... Read More My Journey, Von Willebrand Disease, Women's Bleeding Disorders Bleeding Disorders Care in Guam Shows That No HTC Is an Island One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon... Read More Community in Action Scholarship Provides a Helping Hand to Students Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was... Read More Community in Action, Hemophilia A&B, HIV Hacking Hemophilia GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive... Read More NBDF in Action NHF Inhibitor Education Summits Empower and Connect Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to... Read More NBDF in Action Inside Washington Days 2018 On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared... Read More NBDF in Action, Insurance, Advocacy Fueled by Inspiration: The Stories Behind NHF’s Half-Marathon Team On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding... Read More NBDF in Action After Approval: Ensuring the Safety of Bleeding Disorders Medicines Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not... Read More Advocacy, Community in Action Gathering in Glasgow for the World Federation of Hemophilia World Congress “The threat to the life of just one hemophiliac would be sufficient reason for us to travel to this meeting... Read More Global Focus Everyday Heroes Help the Bleeding Disorders Community Amelia Mickeliunas Lemonade stand fundraiser, Omaha, Nebraska In 2016, when Jenny and Joe Mickeliunas’ newborn son, Elliott, was diagnosed with... Read More Community in Action My Twin with a Bleeding Disorder My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he... Read More My Journey Load More
