In-depth profiles and stories about people in the bleeding disorders community. My Twin with a Bleeding Disorder My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he... Read More My Journey Updated NHF Guidelines Aim to Improve Emergency Care In September 2017, the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) adopted updated guidelines for the treatment of... Read More NBDF in Action 3 Ways to #ShowYourRare on Rare Disease Day 2018 On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations... Read More Community in Action Chris Bombardier: Reaching New Heights How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest. Read More Taking Charge, My Journey A New Era for Hemophilia Care Research The WFH World Bleeding Disorders Registry will advance understanding of hemophilia around the globe. Read More Global Focus The Power of Art A Washington, DC, artist and teacher is using his talents to help the bleeding disorders community. Read More My Journey NHF 2017 Red Tie Soiree Gala raises funds and honors outstanding individuals. Read More NBDF in Action World Federation of Hemophilia World Hemophilia Day 2017 World Hemophilia Day is an opportunity to raise awareness about various issues faced by the global community. This year, on... Read More Global Focus Pumpkin Hats Help Bleeding Disorders Chapter Alan Kennell’s son, Preston, has severe hemophilia A. Every fall, the Kennell family raises money and awareness for bleeding disorders... Read More Community in Action Memorial Honors the Hemophilia Community Affected by AIDS In 1990, Ryan White, an 18-year-old with hemophilia, passed away from AIDS. His mother, Jeanne White-Ginder, felt alone in her... Read More Community in Action NHF Philanthropist of the Year: Gary Farro Farro works to raise money and awareness for people with bleeding disorders. Read More Community in Action Scholarship for Students with Bleeding Disorders The Kevin Child Scholarship provides $1,000 to a student with hemophilia who is pursuing higher education Read More Community in Action Load More
