Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Nikole Scappe, who has von Willebrand disease (VWD), held a fundraiser for the National Hemophilia Foundation in support of the...
The National Hemophilia Foundation’s (NHF’s) 69th Annual Meeting in Chicago began with a message of unity. Reflecting on the battles...
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Barry Haarde has biked across the US to help people with hemophilia in developing countries.
"I learned about NHF and found out what they do, the families that they help."
Por lo general, cuando un proveedor de atención médica se enfrenta a una situación desafiante, quizás recurre a colegas más...
Daniela Delgado and her parents, Janine Achury and Nemorio Delgado created Daniela’s Little Wish, which delivers cakes to children with...
Clear blue skies and bright sunlight greeted the more than 2,700 attendees who gathered in Orlando, Florida, on July 21–23...
This past July featured a first in the world of bleeding disorders: back-to-back meetings. First, the National Hemophilia Foundation’s (NHF’s)...
Megan Adediran didn’t understand what was happening. After her son was born, he bled for five days after circumcision. A...
Federico Parres, a sophomore at Damien High School in LaVerne, CA, has severe hemophilia A and is part of Team...
Driven by love for her young grandson, Trish Griffith, of Knoxville, Tennessee, turned her network of friends and family members...
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