In-depth profiles and stories about people in the bleeding disorders community. Programa Partners in Bleeding Disorders Education Program Por lo general, cuando un proveedor de atención médica se enfrenta a una situación desafiante, quizás recurre a colegas más... Read More Community in Action Taking the Cake Daniela Delgado and her parents, Janine Achury and Nemorio Delgado created Daniela’s Little Wish, which delivers cakes to children with... Read More My Journey Annual Meeting At a Glance Clear blue skies and bright sunlight greeted the more than 2,700 attendees who gathered in Orlando, Florida, on July 21–23... Read More Community in Action Working Together This past July featured a first in the world of bleeding disorders: back-to-back meetings. First, the National Hemophilia Foundation’s (NHF’s)... Read More Global Focus Power In Partnership Megan Adediran didn’t understand what was happening. After her son was born, he bled for five days after circumcision. A... Read More Global Focus Nothing But Net Federico Parres, a sophomore at Damien High School in LaVerne, CA, has severe hemophilia A and is part of Team... Read More My Journey Untapped ‘Friend-Raising’ Abilities Driven by love for her young grandson, Trish Griffith, of Knoxville, Tennessee, turned her network of friends and family members... Read More My Journey Bleeding Disorders Community Pays Tribute John Indence, NHF’s vice president for Marketing and Communications, passed away suddenly on Friday, May 20, 2016. He was 52... Read More Community in Action Spreading the Word: HemosUnite Podcast In each issue, we spotlight a member of the bleeding disorders community. Here, we spotlight Matti Vann, the woman behind... Read More My Journey Washington Days Has Volunteers Seeing Red The scene at Washington Days, the National Hemophilia Foundation’s (NHF) annual advocacy event, is characterized by a sense of excitement... Read More Community in Action California Children’s Hospital Hosts Genetics Day On a rainy Saturday in January, 26 people arrived at Valley Children’s Hospital (VCH) in Madera, CA, for one reason... Read More Community in Action WFH World Congress 2016 Hosted by the National Hemophilia Federation (NHF), the upcoming World Federation of Hemophilia (WFH) 2016 World Congress is expected to... Read More Global Focus Load More
