Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

A Vital Linkage

With our shared history, the World Federation of Hemophilia USA (WFH USA) and the Foundation for America’s Blood Centers (FABC)...
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Global Focus
Hands scooping dirt with seedling

Fostering Growth

When Dawn Rotellini started the Rocky Mountain Hemophilia and Bleeding Disorders Association in Bozeman, Montana, 15 years ago to serve...
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Chapter Roundup, Advocacy

Supporting Our Chapters

Ten years ago, the National Hemophilia Foundation’s (NHF’s) relationship with its chapters was fractured. There was little trust—on both sides—and...
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Chapter Roundup

New Advocacy Website Debuts

The National Hemophilia Foundation (NHF) is proud to announce the debut of our advocacy website in conjunction with our annual...
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Community Pulse, Fighting for You, Advocacy
Creative Outlet

Creative Outlet

Justin Levesque, co-founder of FOLX, launched the Art Stars program to highlight creative achievement in the bleeding disorders community.
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My Journey

WFH’s Humanitarian Aid Program

One of the greatest challenges in trying to improve the lives of people with bleeding disorders in developing countries is...
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Global Focus
People under balloon arch getting ready to start walk

A Turning Point

Hemophilia of South Carolina (HSC) was at a crossroads in March 2013. The 40-year-old, all-volunteer chapter had been facing some...
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Chapter Roundup
performers onstage

Halloween Hit

Alex Borstein is notable for a number of things—as the voice of the preternaturally patient Lois Griffin on FOX’s long-running...
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NBDF in Action, Advocacy
Attendees of 2013 Annual Meeting

Record Turnout

The National Hemophilia Founda­tion’s (NHF’s) Annual Meeting brings together people with bleeding disorders and their families, providers and industry representatives...
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NBDF in Action, NBDF in Action

No Beef

In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their efforts...
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Family Matters, My Journey
Melbourne skyline

WFH 2014 World Congress Heads to Australia

The World Federation of Hemophilia’s (WFH’s) 2014 World Congress, the largest international meeting dedicated to hemophilia, von Willebrand disease, rare...
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Global Focus

Riding High

Jennifer Chun found very little community support for families of people with bleeding disorders in Oahu, Hawaii, when her son...
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Chapter Roundup
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