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Featured On HemAware

Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.
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Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.
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How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Women and girls clinics are closing gaps with coordinated bleeding disorders care that spans every stage of life.
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How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Recent Articles

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.

Rare Bleeding Disorders

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

It’s good to talk to a provider about your treatment options, even if what you’re doing is working.

Taking Charge, Adults & Aging

Culture Clash

Huma Siddiqui of Madison, Wisconsin, has been in the US for a dozen years, but one of the things that...

Taking Charge

Refrigerator for storing hemophilia factor

Safely Storing Factor at Home

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Manage Hemophilia with a Personal Health Record

When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia...

Hemophilia A&B, Taking Charge

Hemophilia Pseudotumors 101

When Murali Pazhayannur slipped while getting into a rickshaw during a Calcutta monsoon, he had no inkling he’d still be...

Hemophilia A&B, Rare Bleeding Disorders

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC